I hope I'm posting this in the right area.  I want to get my story out there in the hopes that someone will have a suggestion.  So here goes.  I'm 31 years old.  I have thought and thought and thought of what could have possibly caused my issues.  I started having symptoms around 9 months after buying my house and 6 months after meeting my boyfriend.  I didn't think anything of it but I did take some antibiotics around that time and I had not yet started my crazy hectic schedule of 2 jobs and school, so it obviously wasn't that although I'm sure it didn't help matters later on. Roughly two and a half years ago I started having some strange "symptoms".  Not really thinking anything was wrong, I just thought they were some weird "quirks".  I first noticed it one day when I was sitting at my boyfriends house.  I kept hearing something and couldn't quite place where the noise was coming from.  It then dawned on me that my ears were ringing.  Not so bad at first but as time has gone on my ears now ring like I have just gone to a loud rock concert.  Sometimes it is so bad that it sounds like feedback from a microphone yet I still have a perfect score on my yearly hearing test.  Like I said I thought nothing of it at first.  I just chalked it up to wearing ear plugs everyday at work.  A few weeks later I start noticing that I'm short of breath all of the time.  It gets so bad that when I lay down in bed I have to sit back up because it feels like I'm going to suffocate.  Once again I try to ignore it thinking that I just have a small chest cold even though I have no congestion.  My hair then starts to fall out.  Not bad enough that I have bald spots or anything, but bad enough that my hair dresser holds up a ball of hair and says "What is this?!"  I told her that "they tell me nothing is wrong"  and she replied "Well I'm no Doctor, but something is obviously wrong".  I have lost track of a time frame but over the last couple of years more symptoms have appeared, each more strange than the last.  Here is a kind of compilation of the rest of my symptoms.  I put on fifty pounds FIFTY POUNDS in less than a year (twenty of it within a week and a half...I thought I was pregnant!) without changing a thing.  Not the way I ate, the way I exercised, or even my job.  I'm mortified about this but I went from 137lbs to 176lbs in less than a year.  I was and still am beyond exhausted all of the time.  I thought it was from stress, but I'm now on summer break working 40hrs (on day shift so I have my evenings off) for the first time in 2 years (instead of 70+), and all of my bills are paid off except house, car, and soon to be student loans so I should be in heaven right?  I'm lucky if I can drag myself to the gym even though I have nothing but time after work and I should be able to keep my house spotless on a daily basis since it's just me and the dog.  Instead most days I procrastinate everything, grab some dinner and watch TV or read a book.  My eyes have also dried out to the point that when I wake up in the morning my eyes stick shut like I fell asleep with contacts in and I have troubles focusing since I see spots ( yet I have a normal eye exam every time). I have this weird "creepy crawly" feeling acrossed my scalp and most of the rest of my body like my skin is "crawling", and I want to rip your face off, cry, and laugh all at the same time.  My skin is now dull, rough, and leathery, and I have dark circles under my eyes that make me look like I got punched in the face.  I have had so many people make the comment that I look tired that I could just scream.  I secretly wanted to cry when people started guessing my 38 year old boyfriend younger than me.  He does have a babyface, but still.  It breaks my heart because I should be popping out of bed excited to be working on my internship in the HR Dept. at work.  I should be dressed like a million bucks with my hair done and makeup on.  Instead I roll out of bed with barely enough time to get dressed put my hair in a frizzy ponytail and make it to work without a minute to spare.  I think that pretty much sums it up for my symptoms and I swear I'm not crazy.  I just cry at remembering how I used to look and feel and I have to show people pictures because they don't believe the change I have gone through.  I usually get that big eyed look of amazement.  As for treatment......here goes.  I started with my family doctor who thought that maybe I was having an allergic reaction to something.  She noted that my ears were really inflamed.  She also tested my thyroid (low but within range so we're not going to treat).  So on to an allergist I went.  Not allergic to a thing.  Strong lungs and good lung capacity.  "Non-allergic rinitis" with some nasal spray that causes all sorts of scarey things.  Back to a different GP hoping for different findings.  I told him that I was at the end of my rope and wanted some answers.  He took a family history and all of my symptoms and ran a battery of tests based on that.  Heart disease, diabetes, sleep apnea, and cancer all run in my family.  So he ran everything from bloodwork to a stress echo, to a sleep study.  Once again thyroid is borderline but we're not going to treat.  Heart is healthy as a horse.  Congratulations you don't have sleep apnea, you have narcolepsy. (I don't fall asleep walking down the street or anything...I do have problems in meetings, but who doesn't.  I guess it's when your brain is stuck between asleep and awake?) Congratulations?  OK.  The treatment was these awful stimulants (I'm sensitive to even caffiene).  I couldn't stop moving or talking and I was shaking so bad I couldn't sign my name.  My chest started to hurt and my blood pressure went through the roof.  The doctor at least admitted that if he couldn't figure it out that it was out of his realm of training and that he would have to refer me on to a specialist.  It was up between a rheumatologist and an endocrinologist and he felt that my problem was hormonal so he sent me to the endocrinologist, but also made me an appointment to the rheumatologist (thinking I might have rheumatoid arthritis).......Ya I chickened out of the apppointment with the rheumatologist.  I did however keep the appointment with the endocrinologist.  I had to travel all the way to Lincoln for this appointment, so I was actually pretty excited thinking I might actually get some answers once and for all.  I was in his office for around five minutes and he starts rattling off all these questions, do you have pms, do you have ovarian cysts, are your periods regular, have you gained a lot of weight, and a lot of other questions I can't remember.  Crazy enough all of these questions were ringing a bell.  He also performed and exam and drew blood.  By the way my thyroid that was "within range?"  He didn't like it and put me on thyroid medication.  Bloodwork came back and I have low progesterone.  Ok good there is a hormone replacement for that.  What he ended up telling me is that he thinks that I have PCOS (poly cystic ovary syndrome).  There is no way to test for it (they base it on an exam) but it causes insuline resistance, weight problems, sometimes cysts but not always, and pms and a lot of other not so fun things I can't remember.  I'm to get the weight off but I'm having a heck of a time.  He says its kind of a nasty cycle but I have to get the weight off.  He has even suggested diabetes medication.  Like I said I really like this doctor.  He really knows his stuff and is very straight forward with any questions that I have.  He tells me that I need to be patient that we will figure this out and I really appreciate him for that, but how patient can you be after almost three years?  I appologize now that I have written a whole book!  It's just that very rarely have I found a doctor or anyone else for that matter who I can be candid with thats not going to look at me like I'm a head case?  It feels good to know that there are other people out there who have the same problem.  Thank you to all who have taken the time to hear me out. 

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Replies to This Discussion

I have both. :-(
 
Kristie Mobley said:

I am interested to find out what helps you.  I have one thing to ask you-do you have silver fillings? ( Also known as amalgams)    I was wondering if a toxin was the root problem (like mercury from fillings?)

I was feeling a little bit better over winter break, but then I went back to full time school and full time work.  I'm thinking that is a huge contributer.  Maybe I'm just getting worn down to the point my body can no longer take???  I did treat myself to a new juicer and have been playing around with different juices.  Also going to attempt to cut out processed foods.....thats going to be the tough one I think.  I rely heavily on caffeine!
 
Darlene Gordon said:

Well I'll throw in some ideas.  I have had most of the symptoms you report with the exception of hair loss.  I do agree with the comment about silver fillings, but also critical is root canals....get rid of both ( I can refer you to a dentist who is an expert in this area).  I lived an extremely stress filled life and exhausted my adrenals.  The adrenals effect the thyroid and other hormones, causing weight gain and fatigue, a dull mind and just plain finding it hard to live a daily life.  Through many years of tracing down natural, holistic healthcare providers, there has been lots of money spent, with improvement and continuing to gain strength.  It has taken many years of not giving up and that is the key...don't give up AND don't take those drugs the allopathic  doctors give out ('cause that is all they have).  I have learned to listen to my body, mind and spirit and work with what it tells me.  I do listen. respectfully, to all health care providers, but I decide what to do.  Restorative sleep, proper nutrition, exercise, supplementation to help specifics are critical, but you have to know the root cause first.  I had ringing in the ears for years that liked to drive me crazy.  When I stopped taking aspirin, which I had for many years, the ringing went away.  If I take aspirin now on a daily basis the ringing comes back.  Vit. D-3 levels in the upper end of normal protects against much disease and aids in overall strength.  Varied medicines can cause ringing in the ears too plus some health conditions.  There are natural doctors around and they are terribly expensive.  There is so much info on line these days which I didn't have.   I hope you will be patient and continue to learn about what you need---there is no quick fix, usually.

Darlene Gordon

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